Wednesday, October 14, 2009

Gluten Update


Life's been busy with moving and school, but we are doing good. So thankful for all the good days.

My 5 year old's test results came back. She does have a gluten sensitivity (she tested positive for the IgA - the response to an allergen, for gluten) and she has 2 alleles for the gene they've found related to gluten sensitivity. That means that my husband and I both have at least one gluten sensitivity allele, and chances are my 9 year old has at least one. My now 9 year old did test allergic to wheat when she was 2, so it makes sense. Still trying to figure out what all the results mean. She also tested positive for ttG, which is what doctors look for first for celiac. She did not have the celiac gene though. I'm planning to call the testing company this week with all my questions and will update you then.

Also, my husband's uncle died of colon cancer a while back, and another one now is very ill with colon cancer. I also have a grandfather and his two brother's that died of colon cancer. Although I don't know for sure, I'm really wondering if gluten is the common thread for these issues. It messes up your digestive tract, so maybe it was an open door for cancer. Don't know, just thinking and doing some research.

All of this to say, we are now a gluten free family. Both girls are also milk free for now, and our 5 year old is also egg free. I am so amazed at the difference it has made in her skin. Her eczema had gotten so bad really quickly, and her skin is now supple and she only has a few little spots of itchiness! Whoo Hoo!

We just started going back to our alternative doc. We are finishing up allergy treatments hoping that without the gluten causing their bodies to be super-sensitive, they will respond well and other allergies won't be as bad.

I am finding I have to make things from scratch. Even gluten free things from the store seem to itch their throats or cause some minor reaction. I'm not sure if it's something in the processing, or an allergy we don't know of yet.

Thanks for following our story. For all of you in the thick of it right now, don't give up! Keep researching, asking questions, and praying for direction. There are so many ways to go, we need the Lord to point us in the right direction for each of our families!

3 comments:

Sophia said...

Hi there! I just stumbled upon your blog and (though I'm only through reading the first 10 months or so) I wanted to thank you SO much for taking the time to put this information online. I have had 4 MRSA boils ("high growth" CA type) in the last 6 weeks. I had my first boil surgically removed and treated the second with a sulfa antibiotic. I would prefer to avoid going back to the doctor since the two I have now are tiny and I have found the doctor to be of little help. I have considered going to an ID doctor but the referrals at my HMO take at least 6 months.

I've read your disclaimers about not being a doctor and fully understand them, but I was wondering if you would answer a couple of questions given your experience? I hope to get through reading your blog soon, and realize I may have missed some things, but since I have 2 boils right now I figured I'd try to get in touch.

If a boil clears with a treatment of Manuka honey (what I'm currently using) and time, do I need to worry about any type of internal infection or seek treatment from a doctor?

What type of tea tree oil do you use and how do you go about diluting it?

Are your girls allergic or irritated to tape/bandaid adhesive? Have you found any solutions for this? I have to say, this is my number one problem in dealing with the MRSA. After a day I have a bandage shaped eczema patch.

I also wanted to respond to one of your posts that I read out of order in which you were wondering about the future, how long you would need to do multiple treatments a day and if you would ever be able to tell your girls "get ready for bed" without getting out the gauze and ointments. I had debilitating eczema from age 4 months to 4 years, and then again from 6 years to around 9 years of age. Food allergies were consistent through my whole life - I started to outgrow them around puberty. I'm 24 now. I still struggle with the eczema and weakened immune system on a regular basis, as well as some complications (the MRSA, a case of herpes I that doctors say they've never seen anything like, and candida infections, apparently from the daily antibiotics I had to take for my eczema for years). It sounds sort of rough, and it can be tiring, but I have to say that going from having 80% of my body covered in staph infected lacerations and not unable to move to THIS is a MIRACLE. I wouldn't trade my past experiences for the world - they have made me into the strong woman that I am today, MRSA and all. I hope the same or similar for your girls. We can never say what plan God has in store for us, but there is hope. Your positive attitude is inspiring and has helped me to rediscover the same in myself. Thank you.

Phew. That was long! I guess I'm excited by your enthusiasm and dedication! Thank you deeply for your help.

AustinMama said...

If you suffer from MRSA and are NOT allergic to garlic- chop up one or two cloves of garlic- and swallow down with water. Do this 2x a day for 1 week to 10 days. Also crush the garlic and apply eternally to boil but only for a few minutes at a time as the garlic can burn your skin. MAKE SURE you take a really strong probiotic (50 billion plus) for minimum of 3 months after garlic to replenish good bacteria in your gut. Also- look into a water supplement called Phenomenal. But take the raw garlic orally- IT WORKS.

Andrei said...

I like you)) So great writing) Hope this is not the end)