Wednesday, October 15, 2014
Thursday, August 29, 2013
Thursday, June 21, 2012
So, what's up with our family? We have been doing well! My girls are now 12 and 8. My 8 year old will still get occasional spots, but they are, for the most part, able to be treated with manuka honey or oil. I can't say enough about the natural healing power God created in manuka honey. It truly is amazing, and I am extremely grateful!
We are still in the middle of trying to figure out my youngest's food allergies and stomach pain. We have over the years pieced together many things to discover what she is allergic to. Right now she is on a diet free of gluten (wheat), dairy, soy, egg, nuts, citrus, tropical fruits, melons, avocado, food colorings and preservatives. This has helped her from having bad reactions after eating, but her stomach pain was still a daily battle.
Recently, we were introduced to the book Disconnected Kids. A friend has a son with aspergers, and another friend with a son with processing issues told me about it. At first I wasn't sure what it had to do with food allergies or stomach pain. My daugther doesn't fit the mold that the book talks about per se. She doesn't have aspergers, adhd, autism, etc. I read the book though and discovered that it talked some about food sensitivities and stomach pain. It's hard to explain, but basically if the two sides of the brain aren't working together, a lot of things can be out of whack. For example, the stomach could not be getting the correct signals to digest it's food. This was the part that struck me. We know from an endoscopy done a few years ago that her food sits in her stomach for a long time without being digested properly. After fasting 13 hours, she still had clumps of food in her stomach. This is the part that prompted me to get her evaluated at The Brain Balance Center.
The test results were unreal. They tested so many things on her. THe basic results were that her eyes aren't working together to process information (the reason she is about a year behind in reading and has said she needs glasses but the eye doctor said her eyes are good). Her vestibular system is also out of whack (explains why she gets a headache and stomach ache in the car and is miserable when traveling). There were many other things they tested, but these are the two that were eye openers for us.
While she didn't fit the typical mold, we knew it could really help her. We signed her up for the 3 month course. It has been truly amazing! She feels so much better! Her stomach pain is not constant anymore, which I hope means her stomach is now starting to digest her food. She feels so much better and is able to handle car rides now, most of the time with ease. We still have 3 weeks to go, but I'm hopeful that she's on the road to feeling better and her body working correctly!
Tuesday, October 11, 2011
We are still struggling through health issues with my youngest. She has asthma, food allergies, and environmental allergies, and eczema. She was in the hospital in March for asthma for two nights. They now have her on asthmanex daily and that seems to be helping to control it. Right now our biggest obstacle is her stomach pain. As I speak she is lying in bed with her stomach hurting. She said it hurt all night and it hurts almost daily. We have figured out some of her food allergies, and I'm thinking there are some still unknown. She is already on a diet free of gluten, dairy, egg, soy, nuts, melons, citrus, and tropical fruits. I'm suspecting some sort of meat as another allergen. Her stomach is distended a lot and she should be skin and bones with all the foods she can't have, but she isn't. We are planning to have a more in depth blood test done. We had one done last year that tested the total IgE in her blood and it showed up as a number over 400. We don't know which allergens make up this 400 number. We know milk is around a 20, egg is a 2. All the known allergens only make up less than 50, so we are missing allergens that make up the other 350. Kinda hard to follow, but that is a HUGE number, especially not knowing what it's coming from.
She also had a severe reaction to carmine, which apparently is red no. 4. We had no idea she had this issue, but the attached picture is of her back. Those red stripes are what happened after ingesting a fruit cup with peaches, pears, and cherries. The rash goes up both shoulders and down her arms as well. Red no. 4 is made from a certain type of beetle, so beware!
Saturday, August 21, 2010
We have been doing wonderful! I am in awe that I can say that because in the midst of it, sometimes it felt like it would never end. It has been 2 1/2 years since the girls were on antibiotics! That's a long time. I can't remember the last time we had MRSA, I think there was one very small boil that went away in a day or two at the end of last summer, but other than that, it's been two years! We found so many things that helped tremendously, much more than the antibiotics and ointments the doctors gave us. Ultimately, I attribute this to God's healing. He gives, and He TAKES AWAY.
The last couple of days I've heard from a few people asking questions, so since it's been a while since I've updated or blogged about MRSA I thought I would blog a "what I would do list" again. I've edited it some since the last time I posted this list.
1) Wash hands frequently with regular soap -- Antibacterial soap will kill the weak germs and leave the strong ones. This leads to more antibiotic resistance! We use alcohol to spray down hard surfaces in the bathroom after showers.
2) Wash all towels and clothes after the first use (even dress up clothes) - it's a lot of laundry but MRSA multiplies very quickly. No sharing towels. I found in some research online that it takes about 30 minutes on high heat to kill the MRSA, so I make sure it's drying for about 30 minutes after the clothes are completely dry. I change sheets once a week. I have at times changed them everyday, but didn't see any difference, so went back to once a week for sanity's sake! The girls have been showering each and every night so they are clean when they go to bed.
3) Keep wounds covered with band-aids or bandages that are sealed on all 4 sides so no pus can escape. We have found Band-Aid brand Ultra Care the best for smaller ones and use gauze and tape for larger ones. We also would make sure the area was not only covered by a band-aid, but also by a layer of clothes for extra measure.
4) We avoid antibiotics if at all possible. Sometimes just draining it is enough. We learned this the hard way. There were many times where the girls were off antibiotics for just a couple days before new spots appeared. Both girls have had candida (too much yeast overgrowth from a lack of good bacteria to keep it under control) from all the antibiotics and that can cause lot of other issues. They were on antibiotics more than 12 times in a year! There are times where antibiotics are necessary. If you really need antibiotics, use Clindamyacin if your MRSA responds to it. The microbiologist I spoke to about MRSA said it's one of the very few antibiotics that enter human cells to get the infection there. I also take Milk Thistle with the antibiotics that helps it enter the cell better (from what my alternative doc tells me). If you can't use Clindamyacin (it is more expensive), take Bactrim or Septra with the milk thistle. It will help it get into the cell and work there.
5) Turmeric really helps with the inflammation and seems to help the pus dry up...one of the best results we've seen. For young children, have them look down when swallowing instead of up. The pills float so looking down makes them go to the back of the throat for when you swallow). When they had any spots I'll give them up to 6 pills twice a day (Hey, in India they use it like we use salt!). You may be able to find this as a liquid or add it to juice or chocolate milk or something if you can't swallow pills.
6) Probiotics - This is basically good bacteria that lives in your gut. Especially important if you are taking antibiotics to help keep up the good bacteria since antibiotics kill both good and bad bacteria. Don't take it at the same time as your antibiotics though because the antibiotics will just kill it. We usually take them right before lunch time. We rotate between Natren and Udo brand and both girls take these everyday.
7) Manuka Honey Ointment. We have been using this on any small spots and it really seems to help. The ointment is only 40% manuka honey, so it's not as sticky as the 100% stuff. If you have a large open wound, go with the 100% manuka honey, but for small spots the 40% seems to work well. We use the ointment found at www.manukahoneyusa.com We found out the hard way, by ordering from another company, that all manuka is NOT the same. Apparently, some companies pass of Tea Tree Oil as Manuka since they are in the same family, but they are different.
8) Manuka oil - This stuff is great! We still use it for many things. It helps with MRSA, bug bites, itchiness, fungal things. It's good stuff!
9) Tea Tree Oil and Colloidal Silver - We use the Manuka oil, but tea tree is helpful as well. Not as much as Manuka, but it's easier to find. Colloidal silver seems to really help, but it seems to need an open wound to get in there and do it's job.
10) Hibiclens. As much as I don't like the fact that this is a type of antibacterial, and I hesitate to include it, we have found it keeps us from having to use oral antibiotics. If we were getting to the point of thinking antibiotics would be necessary, we would spot treat with Hibiclens. We want to leave as much good bacteria on the skin as possible and it works just as well as a whole body Hibiclens rub down. We order this from www.drugstore.com and it comes with a pump top that makes it foamy and is much easier to apply. I would recommend showers instead of baths so you are not sitting in the bacteria, it can be washed off and down the drain in the shower.
In a nutshell:
- Manuka honey, ointment, and oil topically
- Tureric orally
- Keep wounds covered
- Clean clothes and towels daily
Friday, February 12, 2010
I haven't had to time to update in a while. It's been a whirlwind here with a couple of family deaths, and now trying to catch up and get back into life. I really didn't think anyone would notice, but I came back with a ton of comments. So, for those of you that do check in, sorry for the absence! I am grateful that our story can help some of you out there!
I am also truly grateful for the last two years. It's been TWO YEARS this month since my girls have required antibiotics for any infections! How awesome is that! Plus, they have become very RARE! Yes, I said RARE! There is hope! Don't give up. You will come out stronger, trust me!
There were a few questions from readers, so I'm going to try to answer them as best as I can. Just a reminder, that I AM NOT a doctor, this is just my experience and everyone's experience is different! It can be serious, and only you can determine if you need medical care. Here it goes:
Questions from a reader #1:
I noticed your pics of a boil before and after antibiotics. Obviously, it had some effect, but was not permanent and you've still had recurrences.
So, just curious:
1) What antibiotic did you use and did you use the full 10-day course?
Answer: We've used both Bactrim (septra), Clindamyacin (sp?) and IV Vanq (which is vanquomyacin, I think). We've always taken the entire 10 days. We've even had it prescribed for longer and when I was in the hospital I was on IV Vanq, then oral Bactrim and Clindy when I returned home. We've always taken all that was prescribed.
2) Given that it didn't fully eradicate the staph, would you try antibiotics again? Knowing that you're weighing the risks between using it may kill it all, or not and make it more resistant...or not using it and possibly allowing it to spread if other methods don't work?
Answer: I am not against antibiotics when used properly. I think we use them too much and our country is as a whole unaware of other options out there. The big drug companies can pay millions for testing, but unfortunately supplement providers can't afford this. For this reason, we've had to try them ourselves. Thankfully, you can find other's experiences online to compile with your own.
I try to remedy it at home if at all possible because we've used antibiotics, and for us they would help that one infection only to be followed by another. IF one of us got an infection that was not responding to our home treatments, or that got worse, I would go to the doctor for antibiotics. Because we've already gone this route, without great results, I'm less likely to follow it unless absolutely necessary. Home treatment can take a week or so. If it's a large boil, once the drainage starts coming out, it should start getting better quicker. Obviously MRSA can be severely serious, so if it were ever accompanied by a fever or body aches I would go to the ER right away. Those symptoms are evidence that it's spreading and becoming more severe.
3) Do you know of anyone who has been permanently cured using a certain antibiotic? Or any other method?
Answer: I know of no-one that has been permanently cured with any method. My doctor even told me NOT to ask how to get rid of it, just to be responsible to keep it from spreading it to others. This doesn't mean there is no one out there. I do know that some people get one MRSA infection, take an antibiotic for it, and never get an infection again. This is the typical case from what the doctor has told me. One doctor in the ER said my case is extremely rare, but I'm beginning to wonder since there are so many of us online trying to find out more. From what I've learned, it seems that once you have an infection, you have that bacteria living on your skin. Some people have it living on their skin and never have an infection. Puzzling, for sure!
Questions from Reader #2:
Hi there! I just stumbled upon your blog and (though I'm only through reading the first 10 months or so) I wanted to thank you SO much for taking the time to put this information online. I have had 4 MRSA boils ("high growth" CA type) in the last 6 weeks. I had my first boil surgically removed and treated the second with a sulfa antibiotic. I would prefer to avoid going back to the doctor since the two I have now are tiny and I have found the doctor to be of little help. I have considered going to an ID doctor but the referrals at my HMO take at least 6 months.
I've read your disclaimers about not being a doctor and fully understand them, but I was wondering if you would answer a couple of questions given your experience? I hope to get through reading your blog soon, and realize I may have missed some things, but since I have 2 boils right now I figured I'd try to get in touch.
If a boil clears with a treatment of Manuka honey (what I'm currently using) and time, do I need to worry about any type of internal infection or seek treatment from a doctor?
From what I've been told from my doctor and the late Dr. Hudson (MRSA specialist - microbiologist researcher), the signs of internal infection are fever, aches and pains, lines going from your infection site towards the heart.
What type of tea tree oil do you use and how do you go about diluting it?
We have not diluted the tea tree oil. I have read you can dilute it in olive oil. We have used a few different brands, whatever I can get for a good price, but that is pure. Tea Tree Therapy is one we've used. I have to say though, we ran out of tea tree oil, but I had bought some Manuka oil to see if it helped. It does an awesome job! Even better than tea tree oil. It ranks up there with the Manuka honey. I haven't bought Tea Tree Oil since.
Are your girls allergic or irritated to tape/bandaid adhesive? Have you found any solutions for this? I have to say, this is my number one problem in dealing with the MRSA. After a day I have a bandage shaped eczema patch.
Funny you mention that. Two times over the past summer my 9 year old had bike/scooter accidents. She really tore up a knee one time and her elbow the other. We've never had trouble with an injury getting infection, which is kinda strange. It's always been random places. However, both of these injuries required large bandages. I used a stretchy gauze, one that is stretchier than most and she broke out in a rash all around the injury, where the bandage touched her skin, that I had to constantly treat with honey to keep it from getting infected (the rash, not the injury). I have found that bandages with "stretch" to them affect her. I can use just regular roll gauze that's cotton. It stretches from how it's put together but is 100% cotton. Then I use paper tape on top of that. I have found some types of band aids break her out too. We typically use Band-Aid Ultra Strips for smaller places. She doesn't have any trouble with those. Hope that helps!
Thanks again for all the concern and prayers. It's so encouraging to know our story can help others! For those that have contacted me in hopes to contact me personally about your struggles, I am working on getting an email set up for this site. Bear with me.
Wednesday, October 14, 2009
Life's been busy with moving and school, but we are doing good. So thankful for all the good days.
My 5 year old's test results came back. She does have a gluten sensitivity (she tested positive for the IgA - the response to an allergen, for gluten) and she has 2 alleles for the gene they've found related to gluten sensitivity. That means that my husband and I both have at least one gluten sensitivity allele, and chances are my 9 year old has at least one. My now 9 year old did test allergic to wheat when she was 2, so it makes sense. Still trying to figure out what all the results mean. She also tested positive for ttG, which is what doctors look for first for celiac. She did not have the celiac gene though. I'm planning to call the testing company this week with all my questions and will update you then.
Also, my husband's uncle died of colon cancer a while back, and another one now is very ill with colon cancer. I also have a grandfather and his two brother's that died of colon cancer. Although I don't know for sure, I'm really wondering if gluten is the common thread for these issues. It messes up your digestive tract, so maybe it was an open door for cancer. Don't know, just thinking and doing some research.
All of this to say, we are now a gluten free family. Both girls are also milk free for now, and our 5 year old is also egg free. I am so amazed at the difference it has made in her skin. Her eczema had gotten so bad really quickly, and her skin is now supple and she only has a few little spots of itchiness! Whoo Hoo!
We just started going back to our alternative doc. We are finishing up allergy treatments hoping that without the gluten causing their bodies to be super-sensitive, they will respond well and other allergies won't be as bad.
I am finding I have to make things from scratch. Even gluten free things from the store seem to itch their throats or cause some minor reaction. I'm not sure if it's something in the processing, or an allergy we don't know of yet.
Thanks for following our story. For all of you in the thick of it right now, don't give up! Keep researching, asking questions, and praying for direction. There are so many ways to go, we need the Lord to point us in the right direction for each of our families!